
OUR MINDS. OUR LIVES. OUR CHOICES.
Get the Facts First: Join as a member and stay informed with official press releases, statements, and letters from Voices of Alzheimer’s.
Statements and letters from VoA
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March 2025
Voices of Alzheimer’s responds to misleading attacks on amyloid research, highlighting real breakthroughs—FDA-approved treatments, earlier diagnosis, and renewed hope for patients.
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February 2025
Voices of Alzheimer’s releases statement in response to federal healthcare cuts that endanger patients.
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October 2024
Voices of Alzheimer’s Writes Sign-On Letter to Address CMS’s Proposed Reimbursement for Alzheimer’s Blood Tests
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August 2024
Voices of Alzheimer's Signs on to Letter to CMS with Sister Organizations
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July 2024
Voices of Alzheimer's Applauds the FDA's Approval of Donanemab for Early Alzheimer's
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June 2024
Voices of Alzheimer's Applauds FDA Advisory Panel's Endorsement of Donanemab.
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May 2024
Voices of Alzheimer’s leads letter urging CMS to address payment bundling policies that effect individuals living with and at risk of Alzheimer’s.
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February 2024
Amid the Discontinuation of Biogen’s Aduhelm, We Urge Biogen to Prioritize Patient Support.
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October 2023
Two Steps Forward, One Step Back: Voices of Alzheimer's Applauds Medicare's Progress in Removing CED for Amyloid PET Scans but Calls Out its Failure to Ensure Expeditious and Equitable Coverage.
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August 2023
VoA's Official Public Comment On CMS's Broader PET Scan Coverage Proposal.
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July 2023
VoA Celebrates Groundbreaking Donanemab Clinical Trial Results.
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July 2023
VoA Celebrates the FDA’s Historic Traditional Approval of Leqembi for Early Alzheimer’s and Positive Movement on Medicare Access.
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July 2023
Medicare is treating people with Alzheimer's differently - here's how.
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June 2023
Read our recent whitepaper on the Historic and Ongoing Discrimination of Medicare Against People Living with Alzheimer's.
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June 2023
Statement on CMS’ ‘Plan to Ensure Availability of New Alzheimer’s Drugs’.
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May 2023
Vast Majority of American Voters Demand Action Against Medicare’s Incompetence.
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May 2023
A Statement from the CEO of Voices of Alzheimer's in Response to Recent Comments Regarding Medicare Coverage for New Treatments.
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May 2023
Voices of Alzheimer's Demands CMS End Discrimination Against Alzheimer's Patients and Expand Access to New Treatments in Light of Groundbreaking Donanemab Research Results.
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May 2023
A Statement from the CEO of Voices of Alzheimer's in Response to Recent Comments Regarding Medicare Coverage for New Treatments.
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April 2023
Voices of Alzheimer’s signed onto a letter along with 32 other organizations addressing the unmet clinical need for agitation associated with Alzheimer’s disease. Read the compelling piece here.
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April 2023
President and CEO of VoA, Jim Taylor, spoke during the FDA Open Public Hearing on Rexulti for the treatment of agitation associated with Alzheimer’s dementia. Read what he had to say here.
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March 2023
Voices of Alzheimer’s has responded to the Dept. of Veterans Affairs announcement that it will cover new treatments for people with Alzheimer’s.
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February 2023
VoA responds to the latest announcement from CMS regarding coverage for treatments for Alzheimer’s disease.
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February 2023
VoA CEO Jim Taylor made comments to the Medicare Evidence Development & Coverage Advisory group regarding CMS coverage under CED.
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February 2023
VoA’s CEO Jim Taylor commented at the NAPA Advisory Council meeting.
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February 2023
Read VoA’s response to ICER’s Draft Evidence Report assessing the comparative clinical effectiveness and value of emerging treatments.
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January 2023
See our reaction to the FDA announcing the expedited approval of Lecanemab.
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December 2022
See our press release on the latest clinical trial results and what they mean for patients.
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December 2022
See the letter we signed to President Biden on PET scans for Alzheimer’s.
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November 2022
See our press release on the latest research announcement from Roche on gantenerumab.
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September 2022
See our press release announcing the launch of Voices of Alzheimer’s.
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September 2022
See our press release calling on CMS to reverse course on coverage for new treatments.
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September 2022
Nov See a policy letter from 20 organizations to the Dept. of Health and Human Services on coverage requirements.
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September 2022
VoA signed this policy letter with other nonprofit organizations in support of PET scans for Alzheimer’ssigned this policy letter with other nonprofit organizations in support of PET scans for Alzheimer’s.
Press Coverage
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Alzheimer’s research was never a waste of time. Let’s not lose progress.
While scientific integrity must be taken seriously, sweeping claims that amyloid research has wasted time or set us back ignore the significant progress made and the lives already improved.
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Patient advocates merit a voice in FDA drug reviews
Jim Taylor shares his insights on the need for a patient advocacy perspective in the FDA drug review process.
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I took the now-defunct Alzheimer's medication for seven years and it 'paused' my disease - without it there's no hope
Geri Taylor benefitted from now-discontinued Alzheimer's drug for seven years.
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Opinion: Don't restrict Alzheimer's treatments for patients like me
VoA Champion Dan Jaworski expresses his concerns over the lack of treatment options available for individuals living with the disease.
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Medicare is stealing time from Alzheimer's patients
VoA Champion Mike Zuendel addresses frustration with CMS in light of newly approved Alzheimer’s treatments.
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For Alzheimer's patients, a new era of treatment brings hope and risk
VoA Board Member Jay Reinstein was interviewed by the Washington Post about accessing Leqembi, a new drug that slows Alzheimer’s disease.
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Opinion: The Four Corners is unlikely to benefit from a promising Alzheimer's treatment
VoA Champion, Dr. Alan Schooley
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Opinion: Medicare's Alzheimer's drug plan won't help patients like me
VoA Champion Michele Hall
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VOICES: Advocate for Medicare coverage of new Alzheimer's treatments
VoA Member Bob Toia
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An Alzheimer's drug shows promise; Fayetteville protesters want Medicare to cover it
VoA Board Member Jay Reinstein protests for Medicare coverage of Alzheimer’s drugs.
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Pricey Alzheimer's Drug Coverage Hinges on FDA Decision
VoA Board Members Sue Peschin and Jay Reinstein were interviewed by Bloomberg, weighing in on the Medicare coverage of Leqembi.
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Philip Gutis: When the Government Doomed Alzheimer's Patients
VoA Board Member Philip Gutis wrote an op-ed for the Post-Gazette about recent breakthroughs in Alzheimer’s.